David Fiant says his cystic fibrosis and the arduous therapy it required was so bad he “could no longer tell if I was living to heal myself or healing myself to live” IgbereTV reports
While waiting for a lung transplant, he was on oxygen therapy and had a six-hour daily care regime, as well as three to four weeks of antibiotic infusions a year.
Then he became one of the first people in France to take a new triple-drug treatment that has been hailed as a gamechanger for people with the rare life-threatening disorder.
“I took my first dose of the medicine one morning. By 3pm I was feeling first effects,” he said.
For the first time in years he was able to shower by himself, climb 15 steps at once and above all “accompany my daughter to buy comic books”, the 40-year-old said.
When Fiant’s doctor examined him after he started the treatment, he could hear air circulating in his lungs. That had never happened before, he said.
Fiant’s regime of care has since been drastically cut back — and he has become the president of the French non-profit Vaincre la Mucoviscidose (Defeat Cystic Fibrosis).
While the treatment’s results were “spectacular”, he emphasised that it was no miracle.
“There is still no cure for cystic fibrosis,” he stressed
